HAIR

When I was in 4th Grade, my mother was ashamed of me. I had gotten chubby and nothing in the girl’s section of the local department store fit me. The sales lady sniggered and insisted that the only clothes that could possibly fit me were in the “Chubby Department”.  I was mortified. My face turned scarlet with shame and I left the store in tears. At least I had my crowning glory, my beautiful hair.

The very same year, my mother decided it was time to cut my long, golden braid. She was sick of “fixing it” for me in the mornings before we all rushed off to school. She had taken a position at a local elementary school and just didn’t have the time to deal with my hair preparations in the morning and I had never learned how to “do” it myself.  I cried, pleaded, begged and bargained, all to no avail.  She was not just cold-hearted, but downright mean sometimes. Off to her salon for what was called a “lamp cut”. Sitting under the heat lamp after a short cut was intended to enhance natural curl and was the latest thing for girls my age.  Off went my braid in one cut.  When I looked in the mirror again, I saw a chubby, crying girl in a wavy pixie.  I hated it, I hated my mother and I didn’t want to go to school again, ever, all because of hair.

I swore that I would never let this happen again, let someone else determine the fate of my hair.  I learned how to take care of it myself and it grew, and grew, and grew. From an early 1960s flip to blonde straight hair almost to my waist by high school, I was in control of the destiny of my hair. I went from long blond cheerleader hair to long blond hippie hair, the only difference being the part, which moved from the side to the middle.  In the 70s, I cut it short again only to grow it long during the “back to nature” movement when I shunned suburban and city life for rural living. In the 1980s, when I left a conservative, suit-wearing position at a local hospital to go back to school, I sported a spiky punk cut with purple and pink ends. Then in the 1990s, I had a permed bob, only to return to long, shoulder length golden brown hair by the turn of the millennium.   From platinum to natural, from subtle streaks to punky wild colors, from au naturel to covering emerging gray, I tried it all AND it was all my choice.

Hair was an essential part of the my baby boomer experience. My boyfriend and I went to the city to see HAIR, the musical, soon after its debut off Broadway. Boys may not have  been able to control their draft lottery number, but they could rebel by protesting the war in Vietnam and wearing their hair long until induction. Many arguments occurred over dinner tables in my town as dads told their sons to “go get a haircut”!

Until a few months ago I had control over the appearance and length of my hair, given my particular genetics.  Then my hair started falling out around Christmas, a side effect from weekly Interferon injections that began in August.  I read that 40% of people receiving Interferon experience moderate to severe hair thinning, not breaking, but hair falling out at the roots. I didn’t expect this to  happen to me. After all, I had proved that I was in control of my “hair” destiny.  Though my hair had thinned naturally with age from a pony tail as fat as my wrist to something less robust, I was lucky to have lots of hair and I could play with it to my heart’s content. My hair expressed my rebellion, my politics, my independence, my personality and my mood. Dark, light, playful, spunky, sophisticated, messy, long, short, straight and curly, my hair always represented the “me” that I wished to show the world.  I was not afraid of change as long as it was my choice.

It is now weeks after finishing Interferon injections and my hair is still falling out. I have a brutally nasty rash, sores and horrible flaking on my scalp.  Three trips to the dermatologist, three different prescription topicals, and things are improving a bit, but not enough to hide with my now stringy, thin, nasty looking hair.

Each time I treated and washed my hair I dissolved in tears as more and more long strands fell out. I knew I needed to make a decision and “be with” this difficult, if temporary, condition. My dear friend and hairstylist has been coming to my house to trim my hair these last few months. I have been too embarrassed to go into a salon.

Last week I knew it was time for me to take courageous action and let go of the old me, even though I hadn’t consciously chosen this new me. Friday I bit the bullet. I walked in to the salon where my friend does her magic. She gave me a “modified” pixie. She styled my hair to cover the worst of my balding and sores. She noticed little baby hairs coming in, vigorous and healthy, even as my “old” hair continues to fall out. I now call Sharon “the hair whisperer”.

Today I am grateful that my mother chopped off my braid. I wish I could thank her and give her a hug.  Losing my hair at 9-years-old prepared me for my courageous venture Friday that didn’t feel like a choice. Truly, it was a choice. I could have remained “Pitiful Pearl” in tears over my pathetic long strands or I could be “Perky Pixie”, bold and proud.  My new cut truly is a reflection of who I am today. I survived a toxic drug treatment that few are strong enough to endure. I am thriving and growing stronger every day. I have gone from 8 months of being a couch potato to walking 3+ mile walks a day in only a few weeks. By May I’ll return to my favorite dance class and be hiking in the mountains again.  I am a healthy, vital, strong woman and for now my badge of courage is my pixie. I’ll wear a hat to protect my tender scalp, but I will not hide.

I no longer wonder why men complain about balding, get hair plugs and toupees.  I no longer pity those who lose their hair because of chemotherapy, alopecia, genetics or causes beyond their control. Instead I feel compassion. I know what it’s like to be in control of my “hair” destiny and to lose that control. I appreciate that even though we believe we are in control of the “look” we present to the world, there is a limit to that control. I am grateful that I have stepped in to my reality as it is in this moment. Accepting myself completely with or without my “look” du jour, has liberated my heart and soul.  I am who I am. I am whole. I am strong. I am a perfect child of God. I don’t need expensive clothes, a pedicure, make-up, a face lift or “a look” unless I choose it. I might grow my hair again, keep it short, color it or not. I might even lose it again. It doesn’t matter. I love all of me, with or without all my parts, chubby, thin, fit or couch potato. When I am in this place of total acceptance, love and appreciation for the gift of my life and all of its perfect imperfection, my spirit soars!

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Never Give Up*

“Life is what happens to you while you’re busy making other plans….Before you go to sleep say a little prayer; every day in every way it’s getting better and better.”– John Lennon lyrics from Beautiful Boy (Darling Boy)

Some of you know that I am at the tail end of a 36-week anti-viral drug regimen intended to rid my body of Hepatitis C. To say that it has been difficult to endure is supreme understatement. It has been awful. Others quit, but I have persevered, tenacious, unwilling to give up on myself and the cure that I seek.

A few days ago, at week 33, 271 days into treatment, I got the news that the virus is not gone; it is replicating again and treatment was ended. I was told that there was nothing I could have done differently; I was, in fact, a perfect candidate and model patient.

This news is devastating. I am still in shock. Though I knew my chances of cure were 75-85%, meaning there was as great as 25% chance that I would NOT be cured, I figured my chances were worth the risk. Because I have not been “sick” in any way, no liver damage thus far, I thought I would be one of the winners.

On August 5th I began this treatment journey strong, aerobically fit, and determined. I persevered though anemia, low white cell count (suppressing my immune system), hair loss, drug rashes, unbearable itching, extreme fatigue, sleeplessness, agitation, fevers, muscle pain, joint pain, headaches, hearing loss, brain fog, visual auras, bad taste, nausea, stomach pain, bloating, diarrhea, seborrhea and more. Seven drugs were added to my three drug regimen to help with the side effects, not including the antibiotics for food poisoning and bronchitis. I practiced surrender on a daily basis. I prayed to God for help me, “If I am meant to complete this treatment, please guide me, help me, I need help.”

I was a good little girl; I did all the right things. I was perfectly compliant with the drug regimen. I was a great advocate for my health care. I started out prepared, physically and mentally strong, with a positive attitude, sure I would wipe out this virus with the help of this new drug regimen. How could this happen to me?

I don’t understand and yet I do. I know that my purpose on earth is bigger than I can see from my tiny little perspective. I know that my unique gifts include helping others preserver through difficult times and, like me, transition from a history of self-loathing to a lifetime of self-respect and self-love.

Now I have been given extra lessons and gifts that I am only beginning to discover. I know in my heart that I didn’t fail, the treatment failed. If it is true that God doesn’t give us anything we can’t handle, than God really does have a lot of confidence in me. Who am I to NOT have confidence in me?

My opportunity now is to let go of any attachment that this “should” be different; an opportunity to accept, once again, what is.

My opportunity now is to continue to live a loving life and affirm that I am worthy, I am important, I am loved and I am whole.

Truly “I am not what happened to me, I am what I choose to become.” – C.G. Jung

*Special thanks to Eve Rosenberg Blaustein for sharing that you have “never given up” on yourself. I had forgotten. Yes, this is my special gift too.

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Love Springs Eternal

I hope this little story brings a smile to your heart and reminds you that there are no small encounters, no coincidences, and no love that cannot overcome great obstacles. Some relationships are destined to endure. This is one.

My mother passed away nearly 10 years ago, my father has been gone for 8 now. Their love story lives on.  At my son’s most recent dental appointment, he heard his grandparent’s romantic story from the dental assistant!  The assistant remembers meeting Nick’s grandfather more than a decade ago, at a different dental office in town, and she has never forgotten him and this story. If I picked up the phone today and called my dad’s florist or any of the friends he knew later in life, each would remember this story told by a romantic “old” man. Here it is, in honor of my parent’s true anniversary.

Richard (Dick) and Vera met on the Vernal Equinox, March 20, 1937, during the height of the depression, when they were both students at Uniontown High School, Uniontown, PA.

My dad was a scholar; my mom an exotic beauty. My dad’s maternal lineage “landed” in the new world in 1640, a mere generation after the Mayflower. My mom arrived as an immigrant from Northern Italy when she was 7-years-old, her father wisely leaving his beloved homeland because of the rise of fascism. The bank crisis and depression hit Uniontown before the rest of the nation, but that’s a different story. Today’s story is a love story.

My dad was on the high school “debate team” and my mom was an usher in the auditorium for an interscholastic competition. Fortunately my dad didn’t spot her until after his debate; I think he may have been speechless.  As he describes it, nothing in his life came close to the experience of meeting my mother.

Let’s see if I can recall the story as dad told it:

I was on my high school debate team and Vera was an usher for our Spring competition.  It was the first time I noticed her; our high school was large and it was easy to get lost in the crowd. I had never seen anyone more beautiful. Her smile and grace enchanted me. During intermission, I boldly asked her if she wanted to join me for refreshments. We found ourselves in an empty classroom and opened the window to allow in the fresh, spring air. Vera leaned out the window and a light breeze caught her auburn hair. The scent of her was intoxicating. She was playful and laughed easily. I was madly in love.

I asked if I could walk her home and she said that her parents would not allow it.  She had to go with her brother. When I asked “who’s your brother?” she answered. I was stunned and swallowed hard. I HATED her brother. He was Italian and obnoxious.  He always needed to be the center of attention with his gags and horseplay. In that moment of falling in love, my prejudice and hatred fell away. In that moment the only thing that mattered was my heart bursting over with love for this girl.

Every year I buy daffodils for Vera on the first day of spring, our true anniversary.

My Uncle Hermes, who my dad proclaimed to hate until the day he met mom, became one of his best friends. Though my mom and her siblings learned impeccable English quickly with no perceptible accent, her parents did not. Dad learned fairly fluent Italian, the only “Anglo” who “married in” to the family who took the time and trouble to learn. I believe he was my grandmother’s favorite “in law”.

For many years I wasn’t particularly aware of my parents wedding anniversary, they never made a fuss about it. But I could never forget their true anniversary, because the daffodils always appeared on March 20th and there was a special “energy” of love, hope and renewal in the air.

My parents stayed married, to the astonishment of their children and extended family. Their relationship was always fiery and often unkind. I can remember screaming at them as a teenager to just go ahead and get a divorce; their arguments were ugly and hurtful. I had a conversation recently with my only remaining relative of their generation, my mom’s sister, Aunt Lil. She said none of their siblings could understand what kept them together; they never seemed to agree about much of anything except arguing. As Aunt Lil reflected on their relationship, she could accept that this was just the way they communicated and realized that somehow it worked for them. I like her perspective.

Perhaps it was Richard’s romantic nature that brought them together and Vera’s fire that kept their love alive. Perhaps it was that they met exactly when and how they did, on the first day of Spring, both seeing something in the other that inspired them to be more, to live, grow and stay together forever.

In honor of their undying love, my husband and I married on March 20th seven years ago.

I feel my parents smiling today. They are enjoying the daffodils overflowing in the vase on my table. As I breathe in their fragrance, I remember.

Wishing you happy Spring, happy love, happy heart.

Happy Anniversary Mom and Dad. Happy Wedding Anniversary my Love.

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Silent Epidemic

This isn’t a feel good, inspiring post, but I encourage you to read on.

What is this SILENT EPIDEMIC? Hepatitis C (HCV).

At my most recent annual visit with my primary care provider, the nurse handed me a permission form for HIV/AIDS screening.    I commented to her that it’s great that this screening is being routinely offered, but what about Hepatitis C? I knew infection with HCV is more prevalent than HIV/AIDS, yet it’s not common knowledge and there are no routine screening questions at doctor’s visits. I started to wonder, what’s going on with federal health officials to keep this epidemic a secret?

Why should you care? According to the Centers for Disease Control and Prevention (CDC), 3.2 million Americans are thought to have Hepatitis C and about half have not been diagnosed. “Persons newly infected with HCV are usually asymptomatic, so acute Hepatitis C is rarely identified or reported”. Worldwide the number is 170 million. About 15% of those infected clear the infection in the acute phase, those who do not are considered to have chronic infection.  Of those with chronic infection, 60-70% will develop liver disease with 5-20% developing cirrhosis or liver cancer over 20-30 years.  Hepatitis C is the number one cause of liver transplant.  In 2007, 15,000 deaths were related to Hepatitis C, almost 15% more than the number of deaths caused by AIDS. It’s estimated that one in 33 baby boomers are living with chronic HCV. Since a majority of people with chronic hepatitis C are in this age group, federal health officials are considering recommendation of a one-time blood test (as they do routinely for HIV/AIDS) for individuals born between 1945 and 1965.

Why don’t more people know about this? Hepatitis C often has no symptoms until advanced disease takes hold. It is an indolent disease, ticking away like a time bomb, until the immune system is worn down by years of valiantly and quietly fighting the infection. If there are symptoms, they can be vague and transient. Headaches, unexplained joint and muscle pain, chronic fatigue and lowered resistance to infections of all kinds over time. On physical exam, liver inflammation may or may not be apparent during the chronic phase, so may go undetected.  Medical forms rarely ask the most important questions about risk factors that would lead to screening.

What are the risk factors? Experimenting with IV drugs through shared needles, even one time, is the biggest risk factor. The next highest risk are hospital and emergency workers with direct patient care who risk infection by needle stick.  Receiving blood products or transfusion before 1992, when screening became routine in the U.S. is a risk factor. (You can find more risk factors on the CDC website listed below.)

Why isn’t routine testing done?  This isn’t entirely clear, but the stance of federal health officials is that the two drugs for Hepatitis C (a combination of weekly Interferon injections along with twice daily Ribavirin tablets) had a cure rate of only 40% with a duration of 48 weeks. According to the CDC, “there are at least six distinct HCV genotypes (genotypes 1–6) and more than 50 subtypes have been identified. Genotype 1 is the most common HCV genotype in the United States” and has not been a good responder to this treatment. This logic makes no sense, as if recommending screening would cause a “problem”; people rushing off to be tested only to find that treatment was not effective.  But I know from my personal experience of having HCV for nearly four decades, that there ARE steps that can be taken for self-care with this infection (see bullet points below). Finally federal health officials are considering the recommendation for routine screening because two new “protease inhibitors” were approved by the FDA about a year ago, one or the other used in combination with Interferon and Ribavirin. Treatment duration has been reduced from 11 months to as little as six or seven months for those with Genotype 1 who had never been treated. Cure rate has risen to 75 – 85%. Despite this good news, there are no upfront promises on length of treatment.  Depending on viral response, treatment can still be as long as 48 weeks.  The treatment is grueling with side effects severe enough that some people have to drop out of treatment while others may be so debilitated that they need to take medical leave from work.

What does treatment cost?  The two new drugs, Telapravir and Bocepravir, can add a whopping $1,000 to $4,000 a week to the current cost of up to $30,000 for two drug therapy.  Without adequate insurance to reduce out-of-pocket expense, this price tag is prohibitive and the biggest blockade and complaint made by those who are infected.  The irony is that people who can afford this huge financial investment are more likely to have insurance. Those who are willing to go into drug trials can receive free treatment.

Are there other options being explored? Currently, there are new drugs in the last phases of clinical trials. It is hoped that even more successful treatments with fewer side effects will be available within the next few years.

What can you do if you have risk factors? Be honest with your primary care provider about your concern. Ask for a simple blood test. If your test comes back positive for HCV, ask for a referral to a gastroenterologist who specializes in liver disease. Your specialist will check viral load (which is an indicator of chronic infection) and liver values, both simple blood tests that will help determine the severity of your infection.

What can you do to take care of yourself if you have chronic Hepatitis C? 

  • Be proactive and educate yourself. Start with www.cdc.gov
  • Learn how to be an advocate for your health care. (See noted articles below)
  • Take note of what you are eating, drinking and supplementing.  Eliminate or minimize liver stressors, like alcohol and over-the-counter medications. Read all labels. Ask your specialist about what is appropriate for you. Know that some herbal products that you may take routinely may be toxic to the liver. Take vitamin supplements without iron (Hepatitis C feeds on the liver and loves iron).
  • Give your immune system an added boost with adequate rest and exercise.
  • Notice your thoughts and beliefs. If they don’t serve your overall well-being, look at how you can shift them to be empowering.
  • Look around your life and see what stresses you emotionally and energetically. Are there relationships that drain you? Are there issues or problems that create stress? Are you dealing with a loss in addition to the loss of optimal health?
  • Reach out for support. Support groups, Hepatitis C blogs, alternative practitioners, adjunctive therapies, spiritual guidance, a counselor, therapist or coach specializing in working with people with health challenges may help you de-stress as you realize you are NOT alone.

Practice impeccable self-care. Keep current with the latest advances of medicine. And learn to trust your inner voice to discern what’s right for you.

I am currently finishing week 30 of a 36-week protocol of triple-drug therapy for HCV.

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My “Thing” About Barbie Dolls

Last night I saw a post on Facebook suggesting that Mattel introduce a Barbie Doll that is bald due to chemotherapy to help girls and teens experiencing baldness because of cancer treatment. The idea, of course, is that a Bald Barbie would be a role model and comfort to bald children.  My initial response was oh yeah, good idea. [Of course, Mattel would probably introduce chemo accessories, not included in the Chemo Barbie package. Fifteen wigs and two dozen fashion hats. No change in the overall look, just bald.]

From a deeper place exploded my ingrained righteousness and, okay, I admit it, rage about Barbie Dolls. Mattel introduced Barbie Roberts in 1959 as the epitome of what a “teen model” should be. The Barbie craze continues 52 years later and, in my righteous opinion, has never ceased to do harm to girls’ self-image.  Their moms, who grew up with Barbie, continue to support this unrealistic image of beauty. [Sorry moms, don’t attack me, I’m guilty too.  I bought Barbies for my nieces and even my son was enamored with the whole Barbie/Ken thing for a short time.]

Blown up to life size, Barbie’s measurements would be 36-18-38. Come on!  This just is not possible nor is it healthy or desirable.

I recall one or two Barbie dolls in our house when I was a kid.  My older sister sewed the entire costumes for West Side Story for her Barbie named “Maria”. Since our dad had taken us to see West Side Story on Broadway and we had the record of all the songs, it was great fun to play out all the scenes and sing along. I don’t recall a Ken Doll to play Tony, I guess we managed.

My Ginny doll looked like a little girl in comparison. Well, she WAS a little girl, just like me, flat chested, no waist to speak of, a little belly, innocent. No “image” all imagination. I started to judge myself for my affection for Ginny. What was wrong with me that I wasn’t attracted to Barbie? When I think back, she scared the hell out of me.

Yet even had we not had “Unreal Barbie” in our home, it was all over the media anyway and has never stopped. The images of what the ideal teen and young woman should look like were everywhere. Twiggy hit the British modeling scene in the early 60s and though she was impossibly thin and waif-like, we all tried to at least get our make-up exactly like Twiggy’s make-up and squeeze our “real” bodies into fashions that would never work and feel awful about ourselves as a result.

Back to Cancer Barbie. I certainly don’t want to discount the challenge and importance of supporting children who are fighting cancer. We need to support them physically, emotionally and spiritually in every way possible. If a bald doll would help, I’m all for it.

But how about all the girls and boys out there who suffer from eating disorders? Yes, we have an epidemic of obesity in this country that is killing people. But equally deadly is what we do to ourselves to fit in to an ideal that doesn’t exist and is equally unhealthy.

So let’s return to Barbie Doll. I did some research to see if there has ever been a PLUS SIZE BARBIE DOLL, and found the following on Huffington Press:  Turning up in Daily Venus Diva’s search was an Effie from “Dreamgirls” doll, whose memorable curves are clad in a glam brown gown; a Rosie O’Donnell Barbie, who wears the sort of baggy blazer the real-life TV host sports; and The Emme Doll, made to resemble plus-size model Emme Aronson (who these days spends her time blogging for Huffington Press).

Then there’s the curious “Ciotka Kena” Barbie, which in Polish means’ “Ken’s Aunt.” Apparently in Poland, Ken has an aunt with voluminous blonde hair and a white lace teddy — and real-woman curves. A limited edition, “Ciotka Kena” Barbie would most definitely be considered plus-size stateside.

Other than that… there’s not much. Even the Oprah Barbie depicted the TV host in her (much) skinnier days, lest a celebrity’s curves become immortalized in plastic.

There are plenty of thin models and celebs, but the facts on the ground are that 33.8 percent of adults and 17 percent of kids and teens in the US are obese. Does society, namely young girls, need a plus-size Barbie?

Thank you Huffington Press. I vote YES. Introduce a whole line of Barbie Dolls — realistic, healthy, round, luscious bodies, all shapes, sizes, colors and conditions that might actually inspire girls to LOVE their bodies.  Introduce a Ken Doll who doesn’t display a “six pack”, but a realistic teenager who isn’t working out obsessively to be the buffest boy on the football team.

I couldn’t stop there. From a “dot gov” mental health website I found the following statistics:

It is estimated that 8 million Americans have an eating disorder – seven million women and one million men.    One in 200 American women suffers from anorexia.    Two to three in 100 American women suffer  from bulimia.    Nearly half of all Americans personally know someone with an eating disorder.    An estimated 10 – 15% of people with anorexia or bulimia are males.

MORTALITY RATES:    Eating disorders have the highest mortality rate of any mental illness.    A study by the National Association of Anorexia Nervosa and Associated Disorders reported that 5 – 10% of anorexics die within 10 years after contracting the disease; 18-20% of anorexics will be dead after 20 years and only 30 – 40% ever fully recover.  The mortality rate associated with anorexia nervosa is 12 times higher than the death rate of ALL causes of death for females 15 – 24 years old.    20% of people suffering from anorexia will prematurely die from complications related to their eating disorder, including suicide and heart problems.

ACCESS TO TREATMENT:    Only 1 in 10 people with eating disorders receive treatment. About 80% of the girls/women who have accessed care for their eating disorders do not get the intensity of treatment they need to stay in recovery – they are often sent home weeks earlier than the recommended stay. Treatment of an eating disorder in the US ranges from $500 per day to $2,000 per day. The average cost for a month of inpatient treatment is $30,000. It is estimated that individuals with eating disorders need anywhere from 3 – 6 months of inpatient care. Health insurance companies for several reasons do not typically cover the cost of treating eating disorders.   The cost of outpatient treatment, including therapy and medical monitoring, can extend to $100,000 or more.

ADOLESCENTS:  Anorexia is the 3rd most common chronic illness among adolescents.   95% of those who have eating disorders are between the ages of 12 and 2.   50% of girls between the ages of 11 and 13 see themselves as overweight.    80% of 13-year-olds have attempted to lose weight.

RACIAL AND ETHNIC MINORITIES: Rates of minorities with eating disorders are similar to those of white women. 74% of American Indian girls reported dieting and purging with diet pills. Essence magazine, in 1994, reported that 53.5% of their respondents, African-American females were at risk of an eating disorder.

Now you tell me and then tell Mattel, you think a line of PLUS SIZE BARBIE DOLLS would help, even just a little?

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Abducted by Aliens

Lately there are moments when my husband looks at me as though the “real” me has been abducted by aliens and he wonders when I’m coming back. Of course, this is pure projection on my part because I’m the one who feels like I’ve been abducted by aliens.

In my youth I spent an inordinate amount of time not wanting to feel like me. This led to self-medicating, which eventually led to IV drug use and addiction. It’s interesting to me that in my personal recovery I was finally grateful to feel like me and found that I could alter my consciousness in positive ways through spending time in nature, having a spiritual practice and even living “off the grid” for three years. This has grown for me in interesting ways — what I’ve chosen to study, my work, my service and my current hobbies all reflect ways that I have shifted my consciousness to appreciate what it feels like to be me.

Why the current alien abduction scenario? I am in the middle of a drug regimen intended to rid me of a virus I picked up many years ago. With four months to go, I am experiencing many “alien” moments that would put my drug years to shame. I just don’t feel like me. And yet in the bigger picture of life, nothing is static, change is a given. And there is truly no going back to before, I can live only in this moment. So how do I shift to being with this new “alien” feeling?

Byron Katie wrote: “Life is simple. Everything happens FOR you, not TO you…You don’t have to like it — it’s just easier if you do.”

When I shift my perspective to life happening FOR me, for my highest good, for my spiritual growth, for my healing, for my best interest and well-being, I embrace exactly what it feels like to be me in any given moment and remind myself that change is constant. I can fight it or I can love it. I can resist it or surrender to the flow.

Where and how are you resisting the flow of your life? What would it feel like to let go? What would it feel like to embrace exactly who you are right now?

Life is an adventure, a magical mystery tour, filled with challenges, loss, joy, love, surprises and miracles. Discover what you can love about even the toughest part of your journey and feel like yourself again.

*I took this photo of my husband, Win, on Algonquin, New York’s second highest peak. Hiking this mountain for a second time was what I desired most on my 53rd birthday — despite the rain and fog. When I look at it now, I realize the “mother ship” was there all along. Beam me up Scotty!

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Healing Waters

As some of you know, I am currently in the middle of an anti-viral drug regimen.  One of the more “difficult” side effects is a drug rash. This rash can drive people right out of treatment when the itching or rash becomes unbearable. And drug rash I have. Most of the time, I can tune it out, but come the wee hours of the night, I’m wide awake, itchy, and want to jump out of my skin.  Imagine the sensation of bugs crawling on you and every now and then they all decide to bite at once.  Descriptive enough?

My girlfriends, Donna, Jackie and Jen, got me a gift certificate for the Roosevelt Baths here in Saratoga Springs. Though I have tasted all the effervescent healing waters from the springs scattered about the landscape, I have never taken in the healing baths. When I reported that I have a rash and should probably wait, Jen jumped right on it. NO, she said, YOU MUST GO NOW! IT WILL HELP YOU! She relayed her own story of being cured of a horrible allergic reaction to bug bites and then told me that a friend who had a rash from chemotherapy swore the baths got her through. Who am I to argue? I took the plunge, literally, and met my girlfriends at the baths Saturday.

I couldn’t have been more pleased and surprised. Though expecting to come away relaxed and ready for a nap, I couldn’t have imagined the results. Though the rash on my torso was still quite angry looking, the itching subsided for a full 24 hours. I hadn’t had that kind of relief from any home soak or remedy.

I made an appointment to return Wednesday. In the meantime, I spoke to my health care provider about the rash and the baths. She advised numerous over-the-counter drug store remedies. Having already tried many without any relief, I was skeptical.  I talked more about the baths; she was skeptical and suggested that it was probably “just the hydration”. This is not the case, since I have been soaking in Aveeno baths at home daily. None of the OTC remedies did anything for me but aggravate the redness. The closest I’ve come to relief with topical application continues to be PURE Aloe Vera gel (not the kind from the drug store, but the 100% gel from the health food store), and Chrissey’s magic goat’s milk body butter (check it out at joyofthejourneyfarm.com).

Back to the healing waters. Despite the skepticism of my lovely nurse practitioner, who I truly believe has my best interest at heart, I decided to throw the list away of even more drug store topicals and make my investment in another bath.

Wednesday I arrived 45 minutes before my bath. I picked up a book at Saratoga Library written by a doctor who studied The Queen of Spas healing waters for decades. It seemed the perfect addition to my tea as I relaxed before a steam and bath. The tubs are in private rooms, relaxing music, soft lighting, candles, private bathroom. An attendant draws the bath water and comes to find me at the appointed time for my 40 minute soak. The water is deep, effervescent and brown! I can’t see my toes. I float like I’m in a warm sea. This time I visualize the toxins that are no longer needed to kill the virus easily and gently leaving my body. Drawn out by the healing waters, returned to the earth to be transmuted into harmless base. I stay with this visualization throughout my treatment. My bath attendant knocks after 40 minutes and brings me a heated towel. It’s all I can do this time to get dressed and leave the baths. I fantasize about returning on Thursday. I know I’ll be back soon.

There is a risk that I am mistaken. That this “water cure” that I firmly believe in now has no merit. And yet the thought of putting more chemicals ON my skin to relieve an itch and rash that is an allergic reaction to chemicals I’ve ingested just doesn’t make sense. Who am I to argue with thousands of years of tradition of human beings to take in the baths? And to the millions of people who have flocked to Saratoga for its healing waters. Who am I to argue with the dozens of people I see in lines at the springs each time I drive through the park? They aren’t just tasting the waters, they are filling bottles to take home.

This morning my husband reported that the rash on my back is no longer red and angry. In some places it is gone. My chest and belly certainly look better. The itch is subsiding. Now I lay in bed at night and let go of the discomfort. I ask the divine to take it away and bathe me in peace and healing light. I visualize the chemicals that I no longer need easily leaving my body with no allergic reaction. And I dream of my next visit to the baths!

I share this not just to convince you that there are natural healing waters available to us but to pose the following questions: How often do you ignore your intuition that invites you try something new? How often do you defer to the experts when your gut says NO, THERE’S ANOTHER WAY? How often are you afraid to take a risk because you might make be wrong, make a mistake or displease another? Trust yourself, be strong, take a risk. And next time you’re in Saratoga Springs, I’ll meet you at the Roosevelt Baths!

Roosevelt Baths, Saratoga Springs

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Tomorrow’s Secret

Our coaching community meets by teleconference twice a month. It’s a great way to stay connected to our colleagues and friends, since we are scattered all over the world. A group of volunteers from our community organize and take turns facilitating the calls. Last month, Martyn was on the call early to greet coaches as we chimed in from England, Denmark, New Zealand, South Africa, Nova Scotia, Sweden, Vancouver, Taiwan, NY, California, Florida, and points in between.  PHEW!

Martyn lives in Australia. I love talking to him on Thursday afternoon from NY, because it is already Friday morning “down under”. As Martyn is having his first cup of coffee sweating into his wallabies, setting his clock for daylight savings time, I am snuggled in my polar fleece complaining about an early freak snowstorm! I smile as I think about Martyn beginning MY tomorrow as I complete HIS yesterday.

An early arriver on the call from Canada, playfully asked Martyn to tell us about HIS today, OUR tomorrow: “What can we expect tomorrow, Martyn?” In an equally playful voice Martyn responded: “Ooooooo, I can’t tell you that. It’s a secret. You must discover it for yourself.”

What if we began every day like a young child anticipating a birthday, filled with surprise, celebration, excitement?  What would our days be like if we awakened every morning knowing that there is a secret waiting to be revealed in any moment? What would our lives be like if we realized that each day contains a gift beyond anything we can imagine?

Thank you, Karen and Martyn, for this playful exchange that has inspired me to face each day with the curiosity of a child.

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Sorting Beans

I have been thinking about my mother’s cooking lately. When I was a kid, she made wonderful homemade soups and golden, crusty loaves of bread in the cool months. One of my jobs in her kitchen was to “sort beans”. I took a pound of beans and snipped open a corner of the bag, dropped one layer of beans onto a small plate and removed any “defective” beans, grit and tiny stones.  I loved my job. At the time I didn’t realize that it was a meditative experience. I was focused on one thing, pouring, sorting and placing the “clean” beans in a saucepan for soaking. My mother took great care in cooking for her family.

As my kitchen fills with the smell of garlic sautéing in olive oil, I miss her. I recall that the love and warmth that I longed for and was often lacking, I felt most when I was by her side in the kitchen. Along with gardening and sewing, it was the only time she slowed down at home, and it was apparent in the quality and love reflected in what she produced.

My mother went “back to work” when I was 7. She worked as a secretary at a local public school with the benefit of having school vacations off with her children. She still took the time on weekends and vacations to make fabulous, healthy meals. But during the week, her cooking became rushed and frenzied. This was the late 50s and the advent of “frozen food plans”. The big upright kilowatt-sucking freezer went in our basement and was filled monthly with frozen fish sticks, burgers, assorted pot pies and vegetables.  Lucky thing we had that deep freeze, my mother was the blur of a whirling dervish weeknights!  I learned how to cook “on the fly” from her as well, which served me later as a short order cook and for my years as a single mom and caregiver to both of my parents.

As I slow down my cooking, I picture my mother and grandmother side by side in the kitchen, aprons on, delicious smells, wooden spoons flying as they bantered and argued in Italian.  I’ve stopped preparing canned beans except in the direst pinch of time. And yet I notice there are some things I make that just don’t taste as good as my mom’s. As I reflect on this during bean preparation last night, I recall that I have been creating my OWN short cuts to save time and they are not turning out the quality that I remember. I never skip sorting beans, heaven forbid anyone break a tooth on a stone (though I haven’t found one since I was 10). As I look closely, I realize my preparation time has been reduced by short cuts. I no longer use everything I learned by her side in the kitchen.  I decide to go back to the basics. My mother’s Cannellini beans were slightly creamy and deliciously saturated with the flavor of olive oil, salt and garlic. I remember the vital step!  It wasn’t the beans, it was ALL the steps in the preparation, skipping even one spoils the recipe.  I cook the beans as my mother taught me, slowly, deliberately, skipping nothing. I laugh at myself and wonder who AM I to mess with the culinary skills and love of generations of Northern Italian mamas and  cooks in my maternal lineage?

What does this have to do with life? What I learned from my mother was to be deliberate in my intention, preparation, and execution and to always remember to stir in some love.  When I rush to get a meal on the table, the taste is just a little “off”.  I can’t taste the love.

When I rush to produce in my work or communicate in relationships, I am bound to miss an important step, appear unprofessional or uncaring, make a mistake, have to apologize, then double back to try to fix it.  And the love is missing.  When I am deliberate in my intention, preparation and execution, I produce a meal, class, workshop or piece of writing that reflects all the love and caring that I feel in my heart. My communication is clear with clients and loved ones; they know they have been heard and that I care. In the long run I also save the time that it takes to double back and try to “fix it” when I’ve rushed.

My mother, Vera, in 1999 on the left, with two of her four sisters, Lilia and Dina.

How about you? What short cuts are you taking that no longer serve you? What do you miss about a slower pace? What did your mother teach you that still has the value of generations of wisdom? What wise “old” practice or habit can you reclaim now and make your “new” practice today?

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Hitting Rock Bottom

My husband and I had a conversation a few days ago about “what it takes” to make a BIG change in life. I shared with him that for me my biggest changes occurred when I felt like I had hit “rock bottom”. In my early 20s I was living near NY City and I was addicted to heroin and losing my grip fast. I was about to lose my apartment and just barely got myself to work each day. I saw what Methadone programs were doing to others — creating greater addiction and dependence and there was no way I would take that path. I did not feel I could turn to my parents nor did I want to. They had their own “rock bottom” at the time and my shame was too deep. I had to face the truth. I was an addict. I couldn’t get clean alone.

Through allowing myself to surrender to “rock bottom” and then the grace of the Divine, I found another way. Removing myself completely from my environment, giving up my job and apartment, packing up my VW bug and heading a couple hundred miles away to a friend who had offered help, I quit, “cold turkey”, and got the monkey off my back, never to return.

I realize today that this is a theme in life, at least in my life, that sometimes I need to hit “rock bottom” in order to surrender, ask for help, let go, let God.  From somewhere in that place of humility I find the strength to go on.

I could write a book just about my experience of “hitting rock bottom”. But I’ll stop with two more stories.

My first “real” Adirondack Mountain hike that I took was when I was in my late 40s.  I was overweight, out of shape, and had lousy hiking boots. As I struggled to make it to the top and back again, in true tortoise fashion (and covered with mud — head to boot), I engaged in self-deprecating dialogue: I hated myself for being so unfit, I hated hiking, I hated my boots, I hated the boyfriend who took me on this slog, and I vowed I would NEVER hike again. It was October and it looked like I was safe from an invitation until the following year.  I threw away my hiking boots in the nearest trash can and started thinking of excuses.

That was a “rock bottom” place for me. I felt defeated and weak. Something shifted over that Winter that I can’t even recall consciously. By Spring I was shopping for new boots and had begun to work out to strengthen my legs and core, improve my balance and increase my aerobic capacity. Over the next year or so of frequent hiking, I was able to work up to a high peak experience for my 50th birthday! All from hitting “rock bottom” and surrendering to the truth;  I was pathetically out of shape and I needed help.

Fast forward to today. As you know from reading my blog I am in a treatment protocol to cure me of hepatitis C infection I picked up as an IV drug user all those many years ago. Being transparent, no longer hiding both the “truth” of my addiction and my decision to go for treatment, took hitting “rock bottom”. In order to “thrive” during my treatment, I knew that I needed help from the divine, my angels, all the powers of the universe. I reached out and asked for support and the prayers of friends, to have the strength to face treatment each day. I pray for strength. All from experiencing “rock bottom”.

Now at about 11 weeks in, at moments I feel that I’ve hit “rock bottom” again. I need more rest than I did even when pregnant or sick. I need to practice impeccable self-care more than ever. That self-care changes on a daily basis, because my needs seem to change on a daily basis. I never know what to expect. Being fluid, surrendering and “going with the flow” and making constant adjustments has been an extraordinary lesson. I’ve been forced by “rock bottom” to give up hiking and my usual training routine. My body just won’t let me.

I have grown so much in just these few short weeks. I relish in leisurely walks with time to explore my surroundings. My husband and I bought our first canoe (having sold our kayaks a few years ago because we preferred hiking). We’ve been getting outdoors while the weather still allows  us to “paddle”. What a treat! I’ve never really “loved” paddling until “rock bottom”. I feel like a little kid again, noticing all that nature has to offer along the shore, in the water and air.

I love naps. I’ve learned that I really CAN live without caffeine. I appreciate the support of my friends more than ever. I love my life, with all its challenges, and am grateful that I can have this treatment that may be a cure.

I look forward to the days of getting my muscular self back in shape. I believe that I’ll be even stronger because the virus that has been there to offer an extra challenge to everything I do will be gone.  I have a VISION of a healthier-than-ever ME. I have a GOAL of hiking with ease a year from now. Both my vision and goal fuel me on the path to full recovery. I can picture myself scrambling over the ROCKS of BOTTOM. Nothing can stop me.

Do you need to hit “rock bottom” in order to make a change?

Have you created a new VISION and GOAL to inspire your journey? I would love to hear all about it.

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